Pediatric Palliative Care

Target population

Children and adolescents.
What is the service about?

Palliative care for children means complete active care of a child’s body, mind and spirit, also providing support to the family. It starts when a disease is diagnosed and continues throughout life, whether the child receives treatment for the disease or not.

“Sometimes, the best remedy for pain is not medication, but everything else we can do for you and your family”

Who decides whether your child benefits from entering the pediatric palliative care program?

Support from the pediatric palliative care team will be requested at discretion of the patient’s treating or primary doctor.

Program "Cuidando de ti” (Looking after you)

The Service is known as “Cuidando de tí”, a program by Fundación Valle del Lili; where a team of professionals with long experience and great human warmth provide palliative care through a multidisciplinary, comprehensive and continuous intervention, satisfying the needs of children with complex, chronic and limiting diseases, with the aim of improving their quality of life and that of their families.

  • Alleviate your child’s pain and other symptoms of his/her illness.
  • Provide emotional and social support, respecting his/her family’s cultural values.
  • Help healthcare professionals in charge of a child’s treatment to work together and communicate with each other in order to meet their goals.
  • Facilitate open communication among patients, their family and their healthcare team, regarding options and goals of care.

-Palliative care involves complete active care of a child’s body, mind and spirit and also, support for his/her family.

-Palliative care starts when a disease is diagnosed and will continue whether the child receives specific treatment for the underlying disease or not.

-Our team assesses and alleviates physical, psychosocial or spiritual problems affecting the child.

Why choosing Fundación Valle del Lili’s Pediatric Palliative Care Service?

  • Humanization of health care.
  • Compassion and empathy towards children and their family.
  • Comprehensiveness and coordination of the medical team.b

-Children with complex chronic diseases who can benefit from an improvement in communication and coordination of the medical team.

-Patients who face a shorter life expectancy.

-Families in need for support and additional resources, such as home care.

-Patients requiring extensive management of pain and other symptoms, especially when conventional therapeutic methods are ineffective or become harmful.

-Children who have to visit and stay frequently at the hospital, due to deterioration of their clinical condition.

A multidisciplinary team is part of “Cuidando de Ti” program, with a pediatrician, a family doctor, a head nurse, a psychologist, asocial worker, a spiritual guide and volunteers. We evaluate patients through the various services of Fundación Valle del Lili, including outpatient, hospitalization, pediatric ICU, neonatal ICU and emergency.

 

Specialist in Pediatric Palliative Care